Sunday, June 15, 2008

A Love Like No Other








To me this is the most beautiful picture in the world! This is my heart. She smiles no matter what. I wanted to post a few things about Sloan for everyone. We are so excited about her benefit. It is less than a week away. I am so very fortunate to have great friends that are putting this together for us. We are praying for enough money to put a lift on my van to transport her in her power chair. She is growing by leaps and bounds and I can barely get her in the van. It takes 2 people to do so. I just want her to be able to go everywhere I go. She has only been to the grocery store twice in the last few years. I can never just run in somewhere. I am by no means complaining, just stating the facts. She loves going out to eat, but it is so hard to go anywhere. This lift will just make it so much easier.


I have copied Sloan's Bio here for everyone to read:

My name is Sloan Sellars. I am 10 years old and I am a twin. I go to Watauga Elementary School, and I am in the 5th grade. My Sister “Shayla” and I were born 9 weeks premature. I weighed 4.1 lbs. I stayed in the Neonatal Intensive Care Unit for 4 weeks. I came home on an Apnea monitor, and was on it for 6 months. When I was nine months old, I was diagnosed with Cerebral Palsy. This is why I am writing this biography to tell you about me. I had my first surgery when I was 1 year old. My eyes crossed (Strabismus) and had to be straightened. I wore glasses for a few years, but now I am considered legally blind and they don’t help. I had back surgery (Dorsal Rhizotomy) when I was 3 years old to help with the spasticity and muscle spasms in my legs so I could maybe one day walk. It helped with the spasms, but I have never been able to walk on my own. I had another surgery (Bi-lateral Femoral Osteotmy) when I was 5 years old on my right hip and both legs. My hip would pop in and out of socket, and my femur bones were turned inward. The doctor did a de-rotation and turned them around. I was in a complete body cast for 12 weeks. I had another eye surgery when I was 8 years old to fix my eye muscles in my left eye. I also had my hardware from my hip surgery removed when I was 8. I attend therapy weekly at Vanderbilt Pediatric Rehab. I am very active and love playing on the computer and listening to music. I have a power wheelchair and am in it most of the time. My friends are trying to raise money so that we can have a lift put on my Mommy’s van to transport me in my chair. Thank You in advance for any assistance you can give us.


As you can tell, she has had a lot to face for a 10 year old, but let me tell you "She is a fighter!" She always has a positive attitude. She has a determination to succeed at whatever she does. There were days when I did not know if she would talk, she learned to sign. I don't know what the future holds for her just like any other parent. However, I do know she will give her ALL!

Monday, June 2, 2008

Neglect!

What a word!!! No posts lately, as this has also fallen into the category of "Neglect" with all the other million things. Sloan was terribly ill this morning. I should have known when she told her Daddy last night "I don't feel like going to the movies" that something was up. She never turns down a movie, and never misses a chance to spend time with Daddy. She awoke at 5:00 throwing up. It is so hard for her. I am trying to get up from bed with her, turn her over on her side (she used to aspirate on liquids), and scream for Myron all at once. She threw up 3 times in an hour. She got 3 baths, and a morning in Holly J's Beauty Salon. She was so lethargic. I washed her hair, dried it, and straightened it. Yes, a 3 hour process. Gotta love a girl with lots of hair! Myron is so good with her. He has been home all weekend and we have enjoyed it so much. After all of this, I sat down with Shayla. I have been on the "Worst Mommy in the world" list with her. I never do or say the right thing these days. She is so mature, and helps me with Sloan so much I feel I neglect her. How am I supposed to balance it all? I have been praying diligently about this. I was the MIDDLE child and Lord knows I felt I never fit in. I have tried each day to set aside time for just her and I. My friends and I met this week to work on coordination of Sloan's Spaghetti Supper and Silent Auction. It is going well. Blue Cross denied our request for 12 hour shifts. This stinks! My health is still not great, and I really need help the majority of everyday. I will just continue on as we have in the past. I need to work on my sugar levels. I hate this disease. It controls me, and I should control it! I am making a committment to myself to take better care of myself. I have to. Neglect is not a word I want in my vocabulary.